Showing posts with label Leisure. Show all posts
Showing posts with label Leisure. Show all posts

Tuesday, 18 December 2012

The Importance of Tradition: A Journal Entry



I love tradition.  I come from and am part of a family of traditions.  Growing up, holidays were always  a time of making the same yummy recipes, putting up the same Christmas tree, visiting the same people, telling the same funny stories, and putting up the same homemade Christmas stockings for Santa to fill.

Photo of Christmas tree with lights and gold and red decorations

As I grew older, I took with me many of these traditions and eventually introduced them to my own family.  One of my favourite tradition is decorating our Christmas tree.  Eight years ago, when we celebrated our first family Christmas together, we began the tradition of going to a local tree farm to buy our Christmas tree. 

Now remember, global warming had not affected the weather as much, so we had something called “snow.”  The tradition began at the house with the pulling on of big coats, boots, hats, mitts and snow pants.  You always hoped you didn't have to go to the washroom!  Our two dogs, Leo and Riley, also had a special outfit for the event.  Both dogs had their sweaters and Christmas bells put on them.  We laughed as they began their dance trying to get the bells off of their legs. 

We all piled into the van and the Christmas sing-song began.  The tree farm was fairly close so in no time we arrived to a very busy scene.  People, trees, dogs and snow.  What a wonderful, chaotic place!  We quickly filed out of the van and rushed to the opening of the farm.  This is where I would put Brianna into the sleigh we had brought and began to “mush.”  With the dogs prancing beside us, we began to inspect the many trees until finding the perfect one.  At a young age, I always encouraged Brianna to be independent.  With my assistance, she would lay down on the cold snow and begin to saw the tree trunk.  Down it would come with a collective “yeahhhh” from all of us.  We always liked to count the rings on the tree to know how old it was.  For some reason, this was important. 

The tree would then be moved onto the sled to be towed back to the point of entry so we could pay for it.  I always loved that walk back.  The cold, the snow falling softly, the sounds of the dogs bells, and the excited chatter of my family.  I felt at peace.

Once we arrived back, we would proceed into the small building to have hot apple cider.  How wonderful it tasted.  Brianna would then walk through the isles of Christmas decorations and pick out the one she would like to take home with her.  Every year, Brianna still picks out one Christmas ornament to adorn the tree.

The tree would then be strapped to the roof of the van, and we would all pile back into it and head for home.  From the roof, it would be moved into the garage for a day so it had time to fall. 

Once it is time to decorate the tree, family members take on specific roles.  Dawn, is the individual who hands out the tree ornaments to Brianna.  She also has the very important job of ensuring the tree is straight and if not, to coordinate the efforts to make it so.  For some reason, our tree always seems to have a bit of a tilt.  Brianna is the “hanger.”  It is her role to take the ornaments from Dawn and then find a special place on the tree for each and everyone.    Dawn usually helps out with instructions from the couch.  My role starts at the very beginning and goes to the end of the process.  It begins by taking out all of the boxes from storage and moving them into the family room.  Then, from the garage, I take the Christmas tree into the house and put it into the tree stand.  Next, I put a string of lights around the tree and make sure it looks even.  Then my girls join me and the decorating begins.

During the time in my life when I travelled around the world for work, I collected Christmas ornaments.  Over the years, I have accumulated some really beautiful and unique ornaments.  Our family tradition is for me to is take each of these ornaments, prior to the their positioning on the tree, and to provide the history of the ornament.  It comes with the where and when I obtained these special treasures.  Each year, bulbs from South Africa, Mexico, England, The Netherlands, Ireland, Texas and Bethlehem are dusted off and placed in their spot of honour. 

The other special bag that is brought out from its box is that containing Brianna's homemade ornaments.  We all laugh and smile as we pick up each ornament and Dawn reminisces of the stories behind the little gems.

The final, most important moment is shared with Brianna and myself.  It is the adorning of the tree with the Christmas angel.  When Brianna was little, I used to lift her up and she would place it on the top of the tree.  But, now that she is 18, I just stand beside her as she does her work.  And of course, a picture is taken of the yearly event. 

Today, the three of us enjoyed this special day of Christmas tree decorating.  Unfortunately, for the last three years we no longer venture to the tree farm but rather buy a pre-cut tree from a lot. 

Today's event was a bit different as we added a new element to it.  For the first time, we video taped it.  Without saying it, we sensed the importance of capturing this beautiful moment this year.  We are keenly aware that we do not know what Frontotemporal Dementia (FTD) will bring over the next year.  In fact this year, a few variations had to take place to work around FTD.  Brianna took over my role of ensuring that the tree was straight and properly secured.  My sense of frustration was high and I found it hard to tighten the tree holder bolts.  Also, there were fewer decorations on the tree this year.  It is so easy to be over stimulated that less is always better - even on the Christmas tree.

I must say a bit of a sense of relief has come to me.  No matter what life brings to me, I know  my stories of the Christmas ornaments will be passed down through generations.    The important tradition of the tree decorating will continue - no matter what. 

Wednesday, 28 November 2012

Considerations for the Holidays for Families of Persons with Dementia


  1. Take your time. Synchronize your pace to that of your family member with dementia. The holiday season is about enjoying quality time with family and friends, and excessive entertaining activities can be overwhelming.
  2. Plan one activity at a time. Multitasking can lead to frustration.
  3. Understand if your family member doesn’t seem to appreciate the efforts of preparing an elaborate dinner. They may be happy to just be in your company and get anxious with all of the activity and fuss involved in meal preparation. On the other hand, they might really enjoy helping with the preparations for the holiday meal.
  4. Consider the noise level and multiple distractions. These can impact a person with dementia
    when large groups of family or friends are gathered together and do not be offended if your family member wants to go home immediately after eating dinner.
  5. Be considerate of the words “do you remember.” Do not pressure a person to reminisce and
    remember specifics if the memories do not easily come. Consider reflections based on phrases like “I remember when we used to go to…” or “How I enjoyed that holiday when we….”
  6. Share photo albums of previous holiday celebrations. This can assist with a relaxing form of
    reminiscence.
  7. Allow for a quiet space for a family member with dementia to relax. They may need a brief time to rejuvenate to continue with the activities of the season.
  8. Set priorities and a routine for the holidays in advance. Decide what is most important for you and your family member with dementia and focus on those priorities.
  9. Include the person with dementia in decisionmaking and priority setting around the holiday plans. Listen--really listen--to their preferences and hopes for the holidays.
  10. Have fun!

Friday, 19 October 2012

"Living and Celebrating Life Through Leisure" Research and By Us For Us Guide

At the Activity Professionals of Ontario (APO) 2012 Annual Convention in London (October 17-19), members of the Living Life Through Leisure (L3) team, Jessica Luh Kim from MAREP and Karen Megson-Dowling from Sunnybrook Hospital, shared with attendees the research that the team has been engaged in since 2008/2009. 

The L3 team is composed of a group of diverse stakeholders including persons living with dementia, family partners in care, professionals working in the dementia care or recreation field, and researchers, to critically examine how we understand leisure within the dementia context and to create an alternative understanding that would be rooted in the perspectives of persons living with dementia (the "real" experts).

Attendees, mainly Activation and Recreation Professionals working in the community (e.g., day programs, hospitals, retirement homes) and long-term care sector, learned that for many people living with dementia, leisure was a space to experience life despite a diagnosis of dementia.  In fact, people with dementia prefer professionals to stop focusing on the illness and/or disability, but instead support them in living and celebrating life to the fullest through leisure. 

Through leisure, persons with dementia found opportunities to:
  • be me
  • be with
  • seek freedom
  • find balance
  • make a difference
  • grow and develop
  • and have fun!
In a recent presentation by Dr. Allen Power, M.D. (inset) at the Allies in Aging Conference (October 18th, 2012) in Kitchener, Ontario, Dr. Power, an Eden Alternative Educator and the author of "Dementia Beyond Drugs: Changing the Culture of Care", discussed how these 7 leisure experiences were very similar to The Eden Alternative's seven Domains of Well-Being which include:
  • identity
  • growth
  • autonomy
  • security
  • connectedness
  • meaning
  • joy
Attendees at both conferences, APO and Allies in Aging, were challenged to move away from the biomedical approach to dementia and to shift towards a new culture of care where meaningful experiences and well-being are at the forefront of care.

For more information about the By Us For Us Guide - "Living and Celebrating Life Through Leisure", please visit the MAREP website at www.marep.uwaterloo.ca (under educational tools).

Related Posts Plugin for WordPress, Blogger...